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To calculate the reported effectiveness for a patient view, the model first analyses whether it can be ascertained that the person writing the review has had direct experience of the treatment for themselves or a loved one. If so, it then uses sentiment analysis to rate their view from 1-5 on how effective this treatment was for them, with 1 being the least effective, and 5 the most effective.
Patient view
Congrats. Yeah guys anti histamine diet and antihistamines work. Lately I’ve been off the diet and not taking the anti histamine pills as often, and I’ve felt like garbage. Even though the diet is strict. Stick to it!!
September 2024 • /r/covidlonghaulers
Patient view
Game changer. Highly recommend. Better diet reduces inflammation which reduces the strain on the over active immune responses. Would almost go as far as to say diet more important than medication. I have tried anti histamine diet which is quite similar. If you commit you definitely won’t regret it - good luck xxx
July 2024 • Turnto Comment
Patient view
An antihistamine diet works if you have noticeable symptoms of food intolerance.
October 2024 • /r/covidlonghaulers
Patient view
I’m wondering the same thing. I’m about 3 weeks into a low histamine diet while doing trials of antihistamines. I haven’t noticed any significant improvements so far, maybe slightly.
My only symptom is constant drain fog, drunk feeling.
Will low histamine help if this is my only symptom?
October 2024 • /r/covidlonghaulers
Patient view
I’ve heard so many examples through this sub of people having great symptom improvement from keeping to a strict low histamine diet, but I’m not convinced that my LC has the characteristics of MCAS, mainly because none of my symptoms reflect the kind of “allergic reaction” type responses many people have to histamine high foods. I tried a low histamine diet for a couple of weeks, but as I struggle with my appetite/nausea anyway, limiting the foods I could eat was actually really detrimental and I ended up super weak and unwell from basically malnutrition. Since I’ve been eating more “what I want” (albeit still super clean/nothing processed) I wouldn’t say my symptoms have worsened per se, but they also haven’t improved massively. I’ve had a slight increase in low mood/fatigue this week but putting that down to my menstrual cycle.
With that in mind, I’m wondering if low histamine diet is considered a beneficial treatment for ALL LC sufferers, or whether I can get away with not doing it?
(Symptoms for reference by prevalence: fatigue/PEM, POTS, DPDR)
October 2024 • /r/covidlonghaulers
Patient view
I noticed improvement cutting out high histamine foods. I also find my histamine issues flare around ovulation and the last week of my menstrual cycle
June 2024 • Turnto Comment
Patient view
I was strictly low histamine for October and November, and since have been allowing more normal food but having two or three low histamine days a week (while avoiding things I noticed were food triggers to me). I'm honestly amazed that it made as much difference as it has. I'm still a housebound sick person, but less rashes, adrenaline dumps, weird temp spikes, fight/flight response to eating, also less general limb pain (inflammation) it also seems to have calmed down my endometriosis pain but that might be coincidence. I can't afford dao at the moment and quercetin sends me to the loo, so this is without supplements. This is no way is me saying this is going to help everyone, but just me being surprised it has made me a bit more comfortable. For those who do take dao I'd love to know what strength tabs you bought (saving up!) I found the website Through the Fibro Fog the most helpful for recipes, I'm on there most days still. And the sighi list is a necessity
January 2025 • Turnto Comment
Patient view
Seconding the antihistamines and low histamine/elimination diet. Allegra and Pepcid together were game changers for myself. I had to take them for about a week before I felt them working. Also, I started an SSRI and is been helping the anxiety/depression/brain fog a lot. 💜
September 2024 • /r/covidlonghaulers
Patient view
I had an interesting experience with histamine. I thought for a long while that it didn’t effect me, because i didn’t have those typical symptoms. Also my first experiments with histamine management didn’t bring any changes.
What did bring big changes for my symptoms, which I thought previously were (solely) ME/CFS and POTS related, was taking DAO pills before eating anything. I started eating only three meals per day, no snacks, cut out all high histamine food and took a pill before each meal.
I continued to do other histamine management stuff, but this change was what made me realize I did in fact have a constant histaminosis. I don’t believe only eating low Histamin would have been enough for me.
October 2024 • /r/covidlonghaulers
Patient view
Have you tried a low histamine diet? Diet greatly improved my headaches
October 2024 • /r/covidlonghaulers
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