Co-enzyme Q10 Patient Views

Coq10. 5-10% improvement in fatigue within about a week for me personally.

I've been taking coq10 for maybe 2 or so months now. I do believe it has helped marginally with fatigue but hard to say for sure.

Taking coQ10 reduces but doesn’t eliminate my level of fatigue, allowing me at least not have to spend an entire day in bed. It took several tries to get the right dosage for me. It is an OTC supplement.

Coq10 helped me when I was at my worst. You know, when you're laying in a dark room with no sound, only goes to the bathroom and make food, make sure not to take one extra step more than necessary any time during the day, and yet you're still feeling absolutely terrible and like you have to lay down to rest, while you're laying down to rest?

Coq10 helped me get away from that feeling. It's not a cure. Doesn't work miracles. And is expensive. But I do feel like it helps a tiny little bit, that makes some difference when you're mid moderate or worse.

I didn't notice any difference.

At this stage, I see it as looking for the placebo that works for me. CoQ10 wasn't it.

CoQ10 didn't do much for me at the 100mg "recommended" dose. I switched to mitoquinol (a supposedly more bioavailable form of coQ10, brand MitoQ - not an endorsement, it's ridiculously overpriced) at 10mg dose (which is supposed to be equivalent to 100mg coQ10), and it helped fatigue a little, enough to notice. Read a study that was using 300mg coQ10 vs 30mg mitoquinol, so I upped my dose to 30mg, and saw a marked difference in my fatigue. Much, much less fatigue and less PEM. Have been curious to try coQ10 at the higher dose cuz cheaper, but reluctant to lose this reduced fatigue, so I haven't experimented more with it.

I take CoQ10 (ubiquinol) and it helps eliminate most of my brain fog. No energy boost but it does make me feel measurably better. I can see the uptick in my Visible app from when I started it.

I get a small bit more energy from 200mg Ubiquinol a day. But it also has Omega 3 in it so maybe that's part of the help? Qunol Plus is what I use. I notice the difference with it/without it. It's not a miracle but it helps me through a day. The other thing I found did similar for me is 1000mg of good old Vitamin C. So I do one in the morning and the other in the afternoon.

For context I am mild I think, not diagnosed, but suffering with this for 10 months after covid. I'm housebound but work remote full time, albeit lying down and with a lot of breaks. I can't do much more than that.

Nope.

CoQ10 was recommended by Drs. Teitelbaum and Myhill - along with D-Ribose, alpha lipoic acid, and acetyl-l-carnitine. Of the four, only acetyl-l-carnitine has had any positive effect on me.

CoQ10 did give me constipation in its cheap form. The expensive stuff, ubiquinol, was better - it simply had no effect at all.

Coq 10 (well, Ubiquinol, which is a patented, supposedly more bioavailable form of coq10) is a supplement I now swear by. It does a lot to prevent and mitigate crashes/PEM for me. It turns exertion that would cause a day of lying down in misery, having a migraine, and turns it into “oof, I overdid it yesterday” for me. I still definitely feel the fact that I did too much, but I’m no longer turned into a greasy smear on the side of the road, and I just have no energy the next day. Which is a HUGE improvement!!! I take 400mg every morning and night, but if I go too far outside my energy envelope, I take extra.